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Patrick Farley's Story
Patrick Edward Farley was born on April 23, 1997 at 2:08 am at Providence Medical Center in Kansas City, Ks. He was only 2 days early ( due to a hard, complicated, and very stressful pregnancy).
Doctors first noticed something was wrong 4 hours after he was delivered. A specialist from Childrens Mercy Hospital in KC, MO came over to see Patrick.
The doctors at Providence could'nt figure out just what was wrong with Patrick, and why Patrick was spitting up, why everything he swallowed from a bottle was alwys coming back up.
The spaecailist took some swallow test and found out that Patrick was born with T.E. Fiscula ( his esphogus, and stomach we'nt connected),
Now pryor to finding out what was wrong with Patrick I heard something the nurses said after Patrick was born, that realy alarmed my husband Mark, and I.
When the nurses were cheking my placenta for all the vassles ( theres supose to be 3 vessles, but I had on;y 2). I asked the doctors, and nurses if that was alright, but come to later find out from Dr. Opitz that was our first clue that something was wrong. That we was right to be alarmed).
Patrick had his first surgery at 14 hours old - to connect his esphogus, and his stomach together. Twenty-four hours later, a cartologlist came to tell us that Patrick has congenital heart diesease called Tetrology of Fellot ( that Patrick has a hole in the heart, that was alllowing the blue blood to mix with the red blood). With the 2 types of blood mixxing this would cause Patrick to have what they call "Tet-spells" ( he would turn blue around the nose, and
mouth).
We got to bring Patrick home a month after he was born. He spent the first month of his little life up at Childrens Mercy Hospital in NICU.
He was home only a day, but had to go back the following day due to stomach complications. He had to stay in the hospital for another week. We found
out that Patrick was having problems with the formula he was on.
When Patrick finally got to come home, he was on a heart monitor, and a feeding pump, that connected to feeding tube through his nose at the time.
Patrick was only on the heart monitor for almost a year. ( Let me tell you we were so happy to get rid of the heart monitor. That thing would go off at all times of the night, and day, for no reason at all). He still has the feeding problems, and now has a mickey button in his stomach, which has worked out alot better then his nose tube, or, the bard buttons.
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